Our Supporters

    RISE for LCHAD is powered by generous individuals, corporate sponsors, and mission-aligned partners. Together, we're accelerating research and giving kids with LCHAD a brighter future.

    Fueling Hope Event Sponsors

    Thank you to our Golden Hour Sponsor, Phoenix Contact!

    Golden Hour Sponsor
    Phoenix Contact logo

    Phoenix Contact USA, founded in 1981, is advancing the industrial landscape with solutions that connect, communicate, and automate. More than 1,000 employees, including a nationwide network of friendly and knowledgeable sales professionals, help solve application challenges. Our U.S.-based manufacturing and logistics facilities support our customers with faster, more personalized service.

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    Hoosier RV

    Hoosier RV logo

    At Hoosier RV, we believe the journey is just as important as the destination. As a family-owned RV rental company, we're passionate about helping people experience the freedom of the open road with clean, reliable campers and exceptional customer service. Whether you're planning a weekend getaway, a family vacation, or an unforgettable event, we're here to help you make memories that last a lifetime.

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    Katie Lory, Realtor

    Katie Lory, Realtor logo

    My success in real estate stems from my passion, extensive experience, professionalism, and unwavering commitment to serving your real estate needs. I have a passion for working with others and giving back to the community through various philanthropic activities. Giving back is part of who I am. I am excited to partner with LCHAD to support research and cures. www.bifward.com

    Tito's Handmade Vodka

    In Kind Sponsor
    Tito's Handmade Vodka logo

    United States of Indiana

    Creative Sponsor
    United States of Indiana logo

    Creative Sponsor — more information coming soon.

    Duct Squad

    Duct Squad logo

    Get your ducts in a row with the Duct Squad! The Duct Squad is a family owned, local business that specializes in improving indoor air quality. We offer air duct, furnace, and dryer vent cleaning services for both residential and commercial clients.

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    Partners

    Mission Partners

    Organizations working alongside RISE for LCHAD to support families and advance research into fatty acid oxidation disorders.

    Maddie's Spark Foundation

    Maddie's Spark Foundation is a parent-founded 501(c)(3) nonprofit dedicated to raising awareness, accelerating research, and creating a brighter future for individuals and families affected by VLCAD deficiency and related fatty acid oxidation disorders. Through advocacy, education, and the Early SparCK Initiative, the foundation is helping advance innovative research that could transform how these rare diseases are managed.

    Sawyer's Race for Research

    Sawyer's Race for Research is a 501(c)(3) nonprofit organization founded by the Burch family after their son, Sawyer, was diagnosed with Trifunctional Protein Deficiency (TFP)—an ultra-rare, progressive genetic disorder with no cure. Our mission is simple: accelerate research, improve treatments, and help find a cure for TFP. Every dollar raised supports groundbreaking research led by Dr. Jerry Vockley and his team at UPMC Children's Hospital of Pittsburgh, one of the world's leading experts in fatty acid oxidation disorders. Since our founding, our community has raised more than $500,000 for TFP research, helping move promising therapies from the laboratory toward clinical trials and giving families like ours hope for the future.

    UPMC Children's Hospital Foundation

    UPMC Children's Hospital Foundation serves as the catalyst that unites communities and contributors to create healthier futures for all children through life-changing care and groundbreaking research.

    As the sole fundraising arm of UPMC Children's Hospital of Pittsburgh, the Foundation supports the hospital's vision of being a world leader in pediatric health care, education, and discovery.

    Friends of RISE

    Individual Supporters

    The generous individuals whose contributions make our mission possible.

    Gerry and Carol Roth
    Sue Brandenburg
    Shane Devins and Ryan Odom
    Amy and Brad Powlen
    Charlie and Christy Kerrigan
    Andy and Carrie Irving
    Bruce Ashmore
    Trey and Lauren Holden
    Brad Neff
    Gray Tweedy and Steven Verfaille
    Elizabeth Civilis
    John Roberts
    John Bunch
    The Elser Family
    The Agarwal Family
    The Ferreri Family
    Jeff Bernacchi
    Jackie McHugh

    Join Our Community of Supporters

    Whether through a corporate partnership, in-kind gift, or personal donation — every contribution helps fuel research and hope for kids with LCHAD.